Dealing with Emotions

How I was and am now physically feeling through this journey

 

When I went to A&E with a potential stroke in April 2025, the CT and MRI scans picked up the tumour in the brain and was immediately put on to medication.

 

I never experience any negative emotions before. My primary medication was Keppra and Dex. The Keppra (2x1000mg per day) I am still on and believe I will be on this for the foreseen future. The Dex I am now off and in all honestly can not remember if I when I came off it but it has been some time, but it was some months after I was put on it and more likely to be around the start of 5/23 chemo protocol. The run down on the Dex took some time, and sometimes I needed to up a mg to before I came back down; but eventually got to zero.​

 

Looking back, when I was on the Dex I was not myself and not a nice person to be near with heavy moods and emotions - I can admit this now to both family and friends but also myself. This was a hard time for my family and for me looking at myself and trying not to be someone I didn’t want to be.​

 

The current Chemo (5/23 TMZ) and Oncotherm gives me little to no emotional issues. During the week of TMZ and Oncotherm I become tired which makes me feel far from useful in the house. The other 3 weeks though I am back on full from.​

 

I have been given options such as cannabis relaxants but feel that we are currently in control (well as much as one can be)​

 

It’s a hard journey to start with as there is so much going ion and on so many meds and new stages, but my emotions have become better and easier to manager thanks to the family, my medical teams I have been lucky to have and support from many many people in sticking 2 fingers to Gliobastoma.​

 

Hope this gives hope to others in their journey